Our advocacy

Open letter · August 2025

Response to the Minister’s Press Club speech on Thriving Kids

To the Hon. Mark Butler MP

After the Minister’s National Press Club speech on the NDIS, we wrote an open letter. We argued young children with autism and developmental delay belong in the NDIS, and that Thriving Kids must be working before anyone is moved.

In short

1
Around 70 therapy sessions a year for a young child is not over-servicing.
2
Children with autism and developmental delay belong in the NDIS.
3
No child should lose an NDIS plan until Thriving Kids is funded, running and shown to work.

What this is about

On 20 August 2025, Minister Mark Butler gave a speech at the National Press Club about reforming the NDIS. He announced a new program, Thriving Kids, for children with developmental delay or autism, and tighter NDIS eligibility focused on “significant and permanent” disability.

He also said many young children on the NDIS were “over-serviced”, pointing to an average of 70 therapy sessions a year for a child with moderate needs.

What we said

We wrote an open letter to the Minister the next day. We recognised the financial pressure on the NDIS, but opposed any change that weakens early intervention for children.

  • 70 sessions is not too many. That is about 1.3 sessions a week. Guidelines overseas have recommended 20 to 40 hours of structured support a week in the early years.
  • These children belong in the NDIS. The NDIS was designed to include early intervention for children likely to benefit. Children under 15 make up 43% of participants but 13% of spending.
  • Thriving Kids needs to exist first. We welcomed the idea, but the program didn’t exist yet and the timeline wasn’t credible. It should be shown to work before any child moves.
  • Learn from other countries. Denmark, Sweden, Canada and the UK took decades to build well-resourced supports, and none solved costs by moving children off support before an alternative existed.
  • Cut waste, not children. Savings should come from fair pricing, fighting fraud and consistent assessments.

We also set out minimum standards for any change: a documented handover, a named provider and 12 months of follow-up for every child who moves, with the NDIS stepping back in if the new system doesn’t meet their needs.

Published in full

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